Background and Context:
Peer-to-peer support for men with prostate cancer excels in two areas. Men get
PCFA develops strategies to meet the needs of men with special needs. Support for The Advanced Prostate Cancer Support Group is one strategy.
To provide peer-to-peer support for men with advanced prostate cancer (locally advanced, metastatic, recurrent) across Australia.
Initially used an email list, Skype videoconferencing, and man-to-man phone calls.
Major problems emerged:
We tested available technology.
Looking at our members, we found:
Outcomes/What was learned:
Measures: 512 men made initial phone contact. 108 became members. 25 typically join each monthly teleconference. Postings average 1 per day. 45% of emails read. 6% of email links clicked. 61% of members watched YouTube video urging participation in public comment on new drug.
Appropriate technology: Online forum software and teleconferencing little changed since 1980s.
National support: PCFA affiliation, gaining resources, training and audience was a key to success.
Key message: "Blue sky" technologies are key to the future. Today, telephone, email, and messages appropriate in readability and health-literacy suit clientele including older people.